SOUTHERN MAINE LONG TERM CARE GROUP MEETING

 

MINUTES

 

                                                       September 27 2006

 

                                                      2:00 PM4:00 PM

 

Introductions: Debbie DiDominicus, SMAA; Bette Jewett, SMAA; Robyn Berry, Alzheimer’s Association; Kate Dulac, SMAA;  Dianne Fazio, Home Instead Care; Katharyn Ledoux, Kindred Healthcare;  Ann Murray, SMAA; Ann O’Sullivan, SMAA; Jean Partridge; Melissa Picoraro, SMAA; Joline Pothier, Partners In Caregiving, Inc; Ann Scollins, RN; Bonnie Smith; Terry Roy, Goodwill Bayside Neuro Rehab;  Ann Neelon, Maine Medical Center; Susan Rosenbaum, Home Health; Perry Blass, Living Innovations; Margy Gambell, Home Instead Care; Arla Cohen; Jody Deegan, Hospice of Southern Maine; Lu Hutchison, MMC ; Sylvia Harkins, SMAA; Michelle Matt, Goodall Hospital; Liz Paige, Foster Grandparent Program Family/Friends.

 

UPDATES:

 

Ann O’Sullivan, Caregiver Coordinator, SMAA – Red Cross funding through           United Way is available for York County and also Respite funding is available to York residents.  There is a flyer on the back table.  There will be a Best Friends Training at Springvale Library on November 1, 2006 .  The deadline for Mini Grants has been extended to December 1, 2006 .  Projects/programs should be completed by June 30, 2007 .

 

National Case Management Week is October 8 through October 14 2006 .

 

   Friends/Family/Senior Companion Program, Foster Grandparent Program was awarded a

   Federal grant for the Senior Companion Program and was one of seven in the nation.

  The Senior Companion Program received the highest grant.  Flyers are available.

 

   Susan Rosenbaum, Hospice of Southern Maine, talked about the Hospice

   Volunteer program, which was created a year ago.  This program is for hospice

   patients who have a year or under to live.  There are trained volunteers who can go

   into the home and help with patients and also another person the patient can talk to 

   besides medical and family about changes that maybe occurring now or will occur

   in the future.   

 

PRESENTATION:

 

Debbie introduced Dr. Marilyn R Gugliucci, Director of Geriatric Education and Research at University of New EnglandCollege of Osteopathic Medicine . 

 

This is a new job for Marilyn who has a doctorate in Gerontology Post Doc Research Fellowship at UNE - Medical School .  Marilyn was the Director of Bodywise Center for Health and Fitness.  Right now they are waiting to hear about a grant from the Institute on National Health which will allow working in nursing homes with elders who are confined to bed or wheelchair and working with upper body and dexterity training.  It has been proven in the assisted living population that only 5 minutes two times a week within an eight week period can make a difference to the resident.  An example is of an 85 year old person pressing iron and keeping up with the younger population.  Society has an image of older people not being able to exercise.  This is not true.

 

The average age of a Medical student used to be in their 30’s but now they are in their mid 20’s up to 30.  Most of the students are out of their Bachelor’s Degree.  The purpose of this program is for the student to learn how to communicate with institutionalized elders and the project goal was to conduct ethnographic research to determine what the life of an older adult living in a nursing home is like.  The student who wanted to do this is of Lebanese decent and came here in her teen years with her family and whose home in Lebanon was bombed twice.  This student had never been around older adults and no grandparents.  Also the student had never been around the dying process or someone who had died.

 

A good example is of a researcher who had gone into a community in Africa where there was a color difference and trying to fit into the culture.  The reason a two week period was picked is because people after a few days get desensitized and start settling in.  What the student does is write, write, write.  The student wrote two journals, one explaining the experience and what they were seeing; the other explained what was happening to them personally.  In both cases, the two students bulked everything they experienced into one journal because it was easier for them to do. 

 

Dr. Gugliucci made contact with Steve Marston up in Skowhegan, who is a friend and had worked together on the Rural Geriatric Conference which was in June this year and he contacted Sandy River Health Group.  The site of this research project was at Cedar Ridge Center for Health Care in Skowhegan , Maine .  There are five nursing homes now that are willing to take students.  If it is a for profit agency there has been no exchange of money and these facilities are losing $200 to $250 a day by having a student living at the nursing home for two weeks.  Cedar Ridge Center for Health Care really believed in this project, not just for the student, but for the residents and staff.  There were five different wings to the nursing facility so just making sure when meetings were being held and all involved knew about what was going on that there was a student here studying the daily living of residents was very crucial.  When Rana came, none of the residents had been told she was coming.  There was no change made as far as appearance and Rana became roommate with an 85 year old woman with some dementia.  There was a pre-admission visit so Rana could see what it was all about.  Two weeks later Rana started her two week stay.

 

When data is done it is in the form of quotes and categorized according to themes.  There are 4 states of experiences as follows:

 

·        Arriving at the nursing home

·        First days at the nursing home

·        Daily life at the nursing home

·        Leaving the nursing home

 

Dr Gugliucci described Rana’s first pre-admission visit, followed by the first few days of her stay at the nursing facility.  It started as the student being very nervous and sick to her stomach and dreaded every minute and felt it was going to be like a prison atmosphere at the nursing facility.  When Rana actually moved to the nursing home she felt trapped at the thought of being there for two weeks and hated that feeling. There was a twang of jealousy when the nursing staff changed shifts that they could leave and Rana could not.  The first meal was an experience – a salad and soup was ordered and the nurse joked and asked the student if she would like a clothing protector.  Rana just laughed it off, then midway through the meal realized she had a huge chunk of tomato on her shirt and wished she had a clothing protector.  The biggest thing is going to be getting used to being dependent on someone else.  As the days went on Rana, besides feeling homesick, felt very alone and missed the old life and it felt very far away.  Rana mentioned this to the ladies at the nursing home and they asked her to think about how they feel and it was hard to fathom.

 

On Day 9 Rana realized that there is not a lot of privacy. The CNA on duty in the morning came in and yelled GOOD MORNING which Rana felt was very rude and not considerate at all and then pulled the curtain to her area away which left no privacy.  On Day 11 there was a social hour and at the half hour a ceramics class.  It was confusing because how can there be a half hour social hour!  This was very interesting.  On Day 13 Rana sat in a wheelchair which, after sitting for a while, becomes very uncomfortable and you are sitting much lower than everyone else.  This was mentioned to a nurse who squatted down to my level and made me feel much better. 

 

On leaving Rana said it was very hard and sad to leave and say goodbye to everyone as she was feeling like she had been with family.  As stressful, depressing and exhausting the two weeks were Rana learned more in those 2 weeks than she ever learned, she found the knowledge more useful and she is so thankful for all the wonderful people she met, especially the residents who taught her so much.  Rana now wants to be a geriatrician which is something she had never considered before.

 

The next student, Molly Trauten, came from Miami University , Ohio , which requires a student to spend a summer interning at an aging organization.  Molly is a 25 year old and a Masters candidate in gerontology and graduates next May and so had all the theory behind her. Molly’s grandmother resided in a nursing home and had Alzheimer's, so she was familiar with the nursing home setting. Molly started off in Skowhegan in nursing homes. Molly was supposed to be at Southridge, which had a major turnover the week before. Molly was asked after her stay in Skowhegan if there was one thing that you could change, what would it be, and her answer was, I would have more staff.  Is it that there would be more staff or is it that there is learned helplessness and for those who are in the nursing field this means that a person actually learns not to be independent because everyone else is falling all over backwards them and doing everything for the resident.  So in time, the staff are doing all of these things, and the resident is learning not to do anything for themselves.  If the residents were doing more for themselves then the staff would have more time to do other things. What was different for Molly was that she got connected with the people with Alzheimer's and Dementia and attached herself to their essence and heart and was a fabulous thing to do.  The summer consisted of a 12 week internship and went from May 15, 2006 through July 24, 2006 interning at various nursing facilities in Skowhegan, Biddeford and Saco .

 

The immersion idea was Dr. Gugliucci’s brainchild.  It was started in 2005 when a medical student approached her for advice on “how to speak to institutionalized elders.”  In other words “You Mean People” The student was asked if they would be willing to live in a nursing home for two weeks.  The experience so touched the student, who had never spent time around older people before that she wanted to be a geriatrician.  Molly Trauten wanted the same experience but not just for two weeks.  Dr. Gugliucci, who has access to 25 nursing homes through the medical school, found places in Maine willing to take Molly without charge.  Molly stayed at St. Andre’s for longer she started changing the culture and watched the residents become more independent.  The residents were asked to turn off lights and were given little tasks to do.  It was interesting and why it is so important that the time spent in these facilities is two weeks.  One of the things happening at Seal Rock Nursing Home is a training for the CNA ’S where each of them has to sign up for a weekend where they live as a resident and have to go through everything the resident goes through. 

 

The learning opportunities offere medical students and health professional students a chance to learn from experience.  The student gets a fuller understanding because they are experiencing it hands on.  The staff administration and residents benefit from the student being there also.  Every facility the students were said it was the greatest thing.  It just had them turn their thinking.  When they started the facility felt maybe they should be treating the student differently, for instance at St. Andre’s, should we give a TV, should we do this or that. 

 

One of Rana’s experiences was playing scrabble with one of the residents every day, and then the resident had a massive stroke and died before Rana left.  One minute the woman was there and the next she was not.  That was a shock for Rana.  They went through the change of getting different roommates and how unsettling it was.  You would have thought they were 85 years old they way they reacted. 

 

One other word is that Dr. Gugliucci is a Gerontologist – beware of Gerontologists who dye their hair.  If anyone hasn’t seen the movie “Dad” with Jack Lemmon you should try to watch it – very poignant about the changes that go on with the father and also how the son reacts to these changes.

 

Susan Rovillard had asked if it is possible for students to come to home visits of clients?

 

Question:  How did the students feel after leaving, knowing they are going back to their regular lives with the residents staying in the facility.

 

When you read through the students’ notes, they were so entrenched in the here and now, feeling dependent and feeling they were never going to get out.  What is interesting, the residents didn’t think anything of it and embraced the students being there saying, never mentioning how young the students were and why they were there.  In one case when Molly got to St. Andre’s, they took this very seriously and said we don’t impact the staff and St. Andre’s gave Molly a walker, gave her a diagnosis of COPB and congestive heart failure; gave her a nasal cannula.  The visitors coming into the nursing home felt very sorry for her but the residents did not think anything of it.  What was interesting was Molly could not leave her room unless she called someone for an assist and she wouldn’t call anyone because she didn’t want to put the staff out.  This happens with older adults but by the end of the week Molly’s not making it and got so depressed – who wouldn’t – you are stuck in a room and you cannot move.  At the end of the week the assist was taken off and Molly was able to move around again and talk with other residents.  There is no allowance for adaptation – moved from your home, moved into a nursing home and adapt to the situation, if not you will be put on medication.  What about letting a person grieve their home and grieve their change in lifestyle.  Don’t go to medication right away and let person adjust to new surroundings. 

 

Question:  After the students left were the residents aware why they were there?

 

Yes, after a while the residents realized why the students were there and were going through the experience.  They were able to say goodbye to the people they had become close to in the nursing facility. 

 

Question:  Were there recommendations made to the nursing facility?

 

Yes – with Rana it was a situation where she went in to see what the experience would be like but with Molly we met with every nursing home administrator and said what do you want to get out of this project.  All of them got copies of the quotes of the experience.  Some of them were looking at the depression part, some were looking at adaptation.  The project that we were really interested in but did not happen at Southridge was they wanted to study transitions.  They have an acute care floor where residents go from independent living to this rehab floor and has a stigma that once on this floor you don’t go back and so Molly was going to be in the assisted living part and then be transferred into a HIP Mobilizer for a week and go onto that rehab floor and talk to the residents and then transition out again.  It depended on the Nursing Home Administrator as to what they wanted and what the student would focus on. What we were very careful of was not putting too much burden on the staff.  Also never putting a resident in a situation where they would be talking about who they liked or didn’t like and how they felt about the nursing home.  Every nursing home was incredibly accommodating and because they were not getting any money for this project they were truly invested in wanting to inprove their care. 

 

Question:  It is a small piece but why can’t the staff eat with the residents? 

 

Seal Rock tried to get plates off trays and brought in warming trays to make it feel more like a home eating setting but it became too hard because of the volume.  Interestingly enough Molly preferred the older, traditional nursing home, cinder block walls because of the community.  The newer nursing facilities were too quiet, spread out and really separated people so she could not get connected.  Don’t let the way a facility looks tell you the whole story. 

 

Debbie mentioned that while it sounds great to have staff eat with residents, they also need to get away for a break. 

 

Another thing Rana and Molly became aware of is the lack of touch which was very hard.  There was an article in the Boston Globe that said you need four hugs a day to survive, eight to thrive. 

 

Debbie suggested that maybe the students could go into other kinds of housing not just nursing homes.

 

Discussion.

 

2006 Blaine House Conference on Aging – Action Resolutions

 

Larry Gross, Executive Director, SMAA, gave an overview of the Blaine House Conference on Aging.  This was a very influential conference and was scheduled in such a way the recommendations came out of the conference in time for the legislators to adopt the legislation in the upcoming Legislative Session.  It has been a long time since one of these conferences has been held and so many have felt that the advocacy efforts on behalf of older people have lagged as a result of that.  It was a very important time for the Area Agencies on Aging to lean on the Governor a little and maybe it had something to do with what is going on in November to restore the Blaine House Conference on Aging so this year with the help of the agencies on aging and other entities the Governor was convinced that this conference should be held.  As part of that there were fifteen regional forums held across the state of Maine with input from older individuals, provider communities and other interested parties on needs of older people.

 

The results of the forums led to the creation of approximately eight that were discussed by delegates who were selected through those forums for the most part to serve as representatives of their peers at the Blaine House Conference on Aging.  There were approximately 200 people at the conference.  It was very heartwarming at the end of the conference when the pink cards went up and people were voting on resolutions.  There was a lot of help from the Muskie Institute, from a number of other organizations leading up to the conference they received an overview paper on particular topics they had interest in.  Delegates were asked to select an area to contribute to at the Blaine House Conference.  The Delegates were split up into small groups in the morning around those topic areas and then in the afternoon brought everyone together to vote on the recommendations of the small group sessions in the morning. 

 

Eight topics that were selected for discussion.  Two of them were related to Caregivers of Long Term Care Services for Families.  The other was Caregivers of Long-Term Care Services Paid.  The distinction was tried formal and formal caregivers.  There was recommendations made around Community Involvement and Volunteerism; Elder Abuse, Employment, Transportation, Housing with Services and Health Aging.

 

The following are the resolutions which were framed in the form of action resolutions that meant that we were trying to word them in a way that we were directing people to do something.  Because of time constraints each of the workshops in the morning were limited to three resolutions.  Some groups were very specific and some were very broad because they wanted to try to bring everything in and not lose it all.  The proceedings themselves will reflect all the discussion in the groups but these resolutions may not reflect as detailed as reflected.

 

Attached are the Action Resolutions of the Blaine House Conference on Aging and made part of these minutes.

 

Debbie thanked Larry for his presentation.

 

The next meeting will be Wednesday, October 25, 20062:00pm4:00pm

 

Meeting adjourned

 

Respectfully submitted